As told to Nicole Audrey Spector<\/em><\/p>\n November is <\/em>National Epilepsy Awareness Month<\/em>.<\/em><\/p>\n It happened while I was sleeping. I woke up to my then-husband, Duane, sobbing over me in bed. I snapped back into consciousness.<\/p>\n \u201cWhat are you doing, crying?\u201d I asked. <\/p>\n Duane was not one to break down in tears. <\/p>\n \u201cYou were having a seizure!\u201d he cried. <\/p>\n I bolted up in terror \u2014 not so much for me, but for my baby. I was 20 weeks pregnant with my second child. <\/p>\n Immediately, I called my OB-GYN, who fit me in for an appointment in a few days. <\/p>\n I went back to sleep and had another (presumably grand mal) seizure later that night. Then I started having little episodes during the day where I would completely blank on where I was and what I was doing. <\/p>\n My OB-GYN didn\u2019t have any answers about my seizures or whatever else was going on in my brain \u2014 in fact, she didn\u2019t seem particularly curious about what was causing them. <\/p>\n She was mostly concerned with how the baby was doing. She checked for a heartbeat, which was strong, told me I had epilepsy and prescribed anti-seizure medication for me \u2014 and that was that. <\/p>\n The anti-seizure medication worked for a while. But soon the seizures returned. I was a stay-at-home mom and had always devoted myself to caring for my son. But now I needed my own caregiver because I was having multiple seizures a day. Duane wasn\u2019t able \u2014 or even truly willing \u2014 to handle the job, so I went to stay with my mother, who works in the medical field and has always been a strongly advocate for me. <\/p>\n My mom took me to see an OB-GYN who specialized in high-risk pregnancies. <\/p>\n When we were there, she revealed totally shocking information to the doctor: I\u2019d had a seizure during a fever as a child. <\/p>\n This was news to me! Did this mean I\u2019d always had epilepsy? Eventually I would learn that it probably did. <\/p>\n But on that day there were more urgent worries. The OB-GYN discovered that I was heading toward early labor. As she explained it, everytime I had a seizure, my body experienced contractions and I got closer and closer to delivering my baby. <\/p>\n I was already 3 centimeters dilated. <\/p>\n My doctor ordered strict bed rest \u2014 so strict that I couldn\u2019t do it at home. She had me admitted to the hospital, where I remained for three and a half excruciatingly long months, unable to do anything by or for myself. <\/p>\n The worst part was that one of the many doctors who floated in my room one day told me that it wasn\u2019t the baby they were trying to save. It was me. <\/p>\n \u201cThe baby won\u2019t make it,\u201d the doctor said in a clinical, detached tone. \u201cShe will be stillborn.\u201d <\/p>\n I was devastated. <\/p>\n It was tough for me to get by during those bedridden months. The gloom and sadness was as thick as smog. To push through it, I relied on the love for my son, my relationship with God, and making art, which is my profession. I am legally blind and drawing and painting have long been a way for me to capture the visual beauty of the world around me \u2014 even if I can\u2019t always see it. <\/p>\n Stephanie Gowdy with one of her paintings.<\/small><\/p>\n One of the only things I was able to do in the hospital was draw. So I sketched portraits of my friends using pictures on social media.<\/p>\n When I was 38 weeks pregnant, I was induced into labor \u2014 and lo and behold, my daughter came out alive and perfectly healthy. It was a miracle. <\/p>\n But I was far from out of the woods. <\/p>\n The seizures came back after several months, and I have not been able to keep them at bay with any medication, no matter how high the dose.<\/p>\n I learned that I\u2019ve been experiencing epilepsy auras, a type of seizure, all my life. And I still have them. <\/p>\n For me, an epilepsy aura is like a very bad, ominous feeling that takes root in the pit of my stomach and then branches out over my entire being. It can happen anywhere and at any time, but the violent episodes \u2014 the grand mal seizures \u2014 still occur at night, typically when I am already asleep.<\/p>\n It\u2019s been six years since my daughter was born, and my epilepsy remains a force to be reckoned with. I also get horrendous migraine attacks that last weeks at a time. I\u2019m unable to get out of bed on some days. My memory is fuzzy \u2014 so much so that my son has to ask his teachers to write down any messages for me. <\/p>\n \u201cOtherwise Mommy will forget,\u201d he says. <\/p>\n Numerous doctors have told me that they just don\u2019t know what is wrong with me \u2014 that there\u2019s nothing they can do. That, more or less, I am on my own. <\/p>\n There\u2019s no way to sugarcoat it: My journey with epilepsy has been hellish. And yet it\u2019s not ever without hope \u2014 not even for a second. <\/p>\n I not only passionately believe I will find answers as I continue to demand them, but that I am going through all this for a reason that is bigger than me. <\/p>\n There has already been one silver lining because of my epilepsy: Duane and I divorced. That sounds sad, but trust me, it\u2019s a blessing. Had I not gotten sick, we might not have ever realized that we were incompatible.<\/p>\n And I never stop searching for answers. I advocate tirelessly for myself, as do my mother and my friends. I know that if I don\u2019t discover a cure for my epilepsy, I will find a treatment that keeps it under control. <\/p>\n Despite the overwhelming pain and fatigue, art flows out from my hands, filling up pages and pages. I may be unable to entirely see, but my artistic vision is focused. I may tremble and ache from the seizures, but my hand is steady. <\/p>\n And I am confident that one day, I will be well.<\/p>\n Our Real Women, Real Stories are the authentic experiences of real-life women. The views, opinions and experiences shared in these stories are not endorsed by HealthyWomen and do not necessarily reflect the official policy or position of HealthyWomen.<\/em><\/p>\n![\"Stephanie](\"https:\/\/www.healthywomen.org\/media-library\/stephanie-gowdy-and-her-children-march-2022-photo-sonia-rodney.jpg?id=32218726&width=1200&height=800&coordinates=0%2C355%2C0%2C270\")
Stephanie Gowdy and her children, March 2022 (Photo\/Sonia Rodney)<\/small><\/p>\n